After just 24 hours in more than 40 thousand signatures to meet in the Change.org page to require private equity firm with Medicus covering one hundred percent of medical needs required by writer Ricardo Piglia because of the amyotrophic lateral sclerosis suffering, the response has been favorable.
According with daily Clarin , health insurance author of “Burnt Money” announced that it will comply with the judge’s ruling in which he is forced to fully cover medication and supplies prescribed by the attending physician.
As of last night, when the company gave in to the demand, the argument for not supplying medicines as ordered was that the drug called GM604, which does not eradicate the degenerative disease but limits its progress, it is still in experimental phase and therefore no mechanisms established for entry into Argentina.
Given this argument, on Sunday the artist, sociologist and friend of the writer, Roberto Jacoby, demand rose to Change.org to pressure the enforcement of the sentence and this has been signed so far by nearly 86 thousand people, including the writer Claudia Pineiro, Ana Maria Shua, and Margo Glantz Tununa Market.
The drug was developed in California by the laboratory Genervon and has a cost of $ 100,000 per dose. According to the Argentine portal itself, Piglia have paid their own bag the first two supplies.
People close to the author contends that the first applications of GM604 Piglia gained weight and had a visible improvement.
The ALS is a degenerative disease of neuromuscular type gradually paralyzes the tissue type and has a high probability of a fatal outcome.
Ricardo Piglia was awarded in September 2015 with the Formentor Prize for Literature in Mallorca, Spain, but could not attend the ceremony because of his condition. Jorge Herralde the editor in charge of reading the speech “The conditions and hobbies of literature”, in which Piglia wrote: “Life should not be seen as an organic continuity, but a collage of conflicting emotions, which in no way , obey the logic of cause and effect. “
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